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National Information Center
for Children and Youth with Disabilities

Contents

AIDS; Alcohol And Other Drug Abuse

Americans With Disabilities Act

Assistive Technology/Devices

Blindness/Visual Impairments

Burns; Cancer; Child Abuse

Communication Disorders; Craniofacial Syndromes

Deafness/Hearing Impairments; Disability Awareness

Education; Employment; Financial Counseling

Hospice; Information Services

Literacy; Medical/Health Disorders

Mental Health; Mental Retardation; Nutrition

Physical Disabilities; Rare Syndromes

Recreation; Rehabilitation; Respiratory Disorders

Respite Care; Rural

Specific Disabilities

Supplemental Security Income (Ssi); Trauma; Vietnam Veterans/Agent Orange


Forums

Learning and Other Disabilities


Related Articles

A Guide to Children's Literature and Disability



The following is a selected list of toll-free numbers for national organizations concerned with disability and children's issues. Inclusion on this list does not imply endorsement by NICHCY or the Office of Special Education Programs. There are also many national disability organizations providing services and information which do not have toll-free numbers. If you would like additional help in locating assistance contact NICHCY at 1-800-695-0285 (Voice/TTY).

Note: Telephone numbers are designated either Voice (V) or Text Telephone (TTY), indicating their accessibility to TTY users. Spanish-language resources are also indicated.


AIDS

CDC National AIDS Clearinghouse
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)

CDC National AIDS Hotline
1(800) 342-2437 (V)
1(800) 344-7432 (V; Spanish)
1(800) 243-7889 (TTY)

Hemophilia and AIDS/HIV Network for Dissemination of Information
1(800) 424-2634 (V)

Alcohol And Other Drug Abuse

National Institute on Drug Abuse Helpline
1(800) 662-4357 (V)

OSAP National Clearinghouse for Alcohol and Drug Information
1(800) 729-6686 (V)
1(800) 487-4889 (TTY)

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Americans With Disabilities Act (Ada)

Disability Rights Education and Defense Fund ADA Technical
Assistance Information Line
1(800) 466-4232 (V/TTY)

Equal Employment Opportunity Commission
1(800) 669-3362 (V)
1(800) 800-3302 (TTY)

Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)

U.S. Architectural and Transportation Barriers Compliance Board -- Access Board
1(800) 872-2253 (V)
1(202) 272-5449 (TTY)
1(800) 993-2822 (TTY)

U.S. Department of Housing and Urban Development -- HUD User
1(800) 245-2691 (V)

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Assistive Technology/Devices

AbleNet
1(800) 322-0956 (V)

Apple Office for Special Education Material
1(800) 732-3131, ext. 950 (V)

AT&T Accessible Communications Product Center
1(800) 233-1222 (V)
1(800) 896-9032 (TTY)

IBM Special Needs Information Referral Center
1(800) 426-4832 (V)
1(800) 284-4833 (TTY)

TECHKNOWLEDGE
1(800) 726-9119
1(404) 894-4960 (V; Atlanta Metro Area)

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Blindness/Visual Impairments

American Council of the Blind
1(800) 424-8666 (V/TTY)

American Foundation for the Blind
1(800) 232-5463

Blind Children's Center
1(800) 222-3566 (V)
1(800) 222-3567 (V; in CA)

Hadley School for the Blind
1(800) 323-4238 (V)

Job Opportunities for the Blind
1(800) 638-7518 (V)
1(410) 659-9314 (V; in MD)

Lighthouse National Center for Vision and Child Development
1(800) 334-5497 (V)
1(212) 821-9713 (TTY)

National Association of Parents of the Visually Impaired
1(800) 562-6265

National Society to Prevent Blindness
1(800) 331-2020 (V)

Recording for the Blind
1(800) 221-4792 (V)

The Foundation Fighting Blindness
1(800) 683-5555 (V)
1(410) 785-1414 (V; in MD)
1(410) 785-9687 (TTY)
1(800) 683-5551 (TTY)

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Burns

Phoenix Society
1(800) 888-2876 (V)

Cancer

Cancer Information and Counseling Line
1(800) 525-3777 (V)

Candlelighters Childhood Cancer Foundation
1(800) 366-2223 (V)

National Cancer Information Service
1(800) 422-6237 (V; English/Spanish)

Child Abuse

Clearinghouse on Child Abuse and Neglect/Family Violence Information
1(800) 394-3366 (V)

National Resource Center on Child Sexual Abuse
1(800) 543-7006 (V)

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Communication Disorders

National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V)
1(800) 241-1055 (TTY)

Craniofacial Syndromes

Children's Craniofacial Association
1(800) 535-3643 (V)

FACES -- National Association for the Craniofacially Handicapped
1(800) 332-2373 (V)

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Deafness/Hearing Impairments

American Society for Deaf Children
1(800) 942-2732 (V/TTY)

Better Hearing Institute
1(800) 327-9355 (V/TTY)

Deafness Research Foundation
1(800) 535-3323 (V/TTY)
1(212) 684-6559 (V/TTY; in NY)

Hear Now
1(800) 648-4327 (V/TTY)

John Tracy Clinic
1(800) 522-4582 (V/TTY)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)

National Hearing Aid Society
1(800) 521-5247 (V)

National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V)
1(800) 241-1055 (TTY)

TRIPOD (Information for parents of deaf children)
1(800) 352-8888 (V/TTY)
1(800) 287-4763 (V/TTY; in CA)

Disability Awareness

Kids on the Block
1(800) 368-5437

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Education

American Association for Vocational Instructional Materials
1(800) 228-4689 (V)

Association for Childhood Education International
1(800) 423-3563 (V)
HEATH Resource Center
1(800) 544-3284 (V/TTY)
1(202) 939-9320 (V/TTY; in DC)

National Center for Research in Vocational Education
1(800) 762-4093 (V)

National Center for School Leadership
1(800) 643-3205 (V)

U.S. Office of Educational Research and Improvement
1(800) 424-1616 (V)

Employment

Equal Employment Opportunity Commission
1(800) 669-3362 (V)
1(800) 800-3302 (TTY)

Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)

Job Opportunities for the Blind
1(800) 638-7518
1(410) 659-9314 (V; in MD)

Financial Counseling

National Foundation for Consumer Credit
1(800) 388-2227 (V)

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Hospice

Children's Hospice International
1(800) 242-4453 (V/TTY)

HOSPICELINK
1(800) 331-1620
1(203) 767-1620 (V; in CT)

Information Services

ABLEDATA/National Rehabilitation
Information Clearinghouse
1(800) 346-2742 (V/TTY)

ACCESS ERIC
1(800) 538-3742 (V)

BRS Information Technologies
1(800) 289-4277 (V)

National Easter Seal Society
1(800) 221-6827 (V)
1(312) 726-4258 (TTY)

National Information Clearinghouse for Infants with Disabilities and Life Threatening Conditions
1(800) 922-9234, ext. 201 (V/TTY)
1(800) 922-1107, ext. 201 (V/TTY; in SC)

ODPHP National Health Information Center
1(800) 336-4797 (V)

Office of Minority Health Resource Center
1(800) 444-6472 (V)

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Literacy

National Literacy Hotline
1(800) 228-8813 (V)
1(800) 522-9097 (TTY)

Medical/Health Disorders

American Association of Kidney Patients
1(800) 749-2257 (V)

American Brain Tumor Association
1(800) 886-2282

American Diabetes Association
1(800) 582-8323 (V)

American Kidney Fund
1(800) 638-8299 (V)

American Liver Foundation
1(800) 223-0179 (V)

American Lupus Society
1(800) 331-1802 (V)
Asthma and Allergy Foundation of America
1(800) 727-8462

Chronic Fatigue and Immune Dysfunction
Syndrome Association
1(800) 442-3437 (V)

Federal Hill-Burton Free Hospital Care Program
1(800) 638-0742 (V)
1(800) 492-0359 (V; in MD)

Leukemia Society of America
1(800) 955-4572 (V)

Lupus Foundation of America
1(800) 558-0121 (V)
1(800) 558-0231 (V; Spanish)

National Association for Sickle Cell Disease
1(800) 421-8453 (V)

Shriners Hospital for Crippled Children
1(800) 237-5055 (V)
1(800) 282-9161 (V; in FL)

United Ostomy Association
1(800) 826-0826 (V)

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Mental Health

National Alliance for the Mentally Ill
1(800) 950-6264 (V)

National Clearinghouse on Family Support and
Children's Mental Health
1(800) 628-1696 (V)

National Mental Health Association
1(800) 969-6642 (V)

Mental Retardation

American Association on Mental Retardation
1(800) 424-3688 (V)

The Arc
1(800) 433-5255

Nutrition

Beech-Nut Nutrition Hotline
1(800) 523-6633 (V)

Gerber Consumer Information
1(800) 443-7237 (V)

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Physical Disabilities

National Spinal Cord Injury Hotline
1(800) 526-3456 (V)

Human Growth Foundation
1(800) 451-6434 (V)

Physically Challenged Resource Center
1(800) 255-9877 (V)

Rare Syndromes

Alliance of Genetic Support Groups
1(800) 336-4363 (V)

National Information Center on Orphan Drugs and Rare Diseases
1(800) 456-3505 (V)

National Organization for Rare Disorders
1(800) 999-6673 (V/TTY)

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Recreation

Adventures in Movement for the Handicapped, Inc.
1(800) 332-8210 (V)

Magic Foundation
1(800) 362-4423 (V)

North American Riding for the Handicapped, Inc.
1(800) 369-7433 (V)

Sunshine Foundation
1(800) 767-1976 (V)

Rehabilitation

Clearinghouse for Rehabilitation and Technology Information
1(800) 638-8864 (V)
1(800) 852-2892 (TTY)

National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219 (V/TTY)

National Rehabilitation Information Clearinghouse/ABLEDATA
1(800) 346-2742 (V/TTY)

Respiratory Disorders

National Jewish Center for Immunology and Respiratory Medicine -- LUNGLINE
1(800) 222-5864 (V)

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Respite Care

Access to Respite Care and Help (ARCH)
National Resource Center, National Respite
Locator Service
1(800) 773-5433 (V)

Rural

ERIC Clearinghouse on Rural Education and Small Schools
1(800) 624-9120 (V)
1(800) 344-6646 (V; in WV)

Rural Institute on Disabilities (Montana Univ.
Affiliated Program)
1(800) 732-0323

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Specific Disabilities

Attention Deficit Disorder Association
1(800) 487-2282 (V)

Cleft Palate Foundation
1(800) 242-5338

Cooley's Anemia Foundation
1(800) 522-7222 (V)

Cornelia de Lange Syndrome Foundation
1(800) 223-8355 (V)
1(800) 753-2357 (V; in CT)

Cystic Fibrosis Foundation
1(800) 344-4823 (V)

Epilepsy Foundation of America
1(800) 332-1000 (V)

National Down Syndrome Congress
1(800) 232-6372 (V)

National Down Syndrome Society
1(800) 221-4602 (V)

National Fragile X Foundation
1(800) 688-8765 (V)

National Multiple Sclerosis Society
1(800) 532-7667 (V)

National Organization for Albinism and Hypopigmentation
1(800) 473-2310 (V)

National Reye's Syndrome Foundation
1(800) 233-7393 (V)

National Tuberous Sclerosis Association
1(800) 225-6872 (V)

Orton Dyslexia Society
1(800) 222-3123 (V)

Prader-Willi Syndrome Association
1(800) 926-4797 (V)

Spina Bifida Associations of America
1(800) 621-3141 (V)

Stuttering Foundation of America
1(800) 992-9392 (V)

Sudden Infant Death Syndrome Alliance
1(800) 221-7437 (V)

Tourette Syndrome Association
1(800) 237-0717 (V)

United Cerebral Palsy Associations
1(800) 872-5827 (V/TTY)

United Leukodystrophy Foundation
1(800) 728-5483 (V)

United Scleroderma Foundation
1(800) 722-4673 (V)

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Supplemental Security Income (Ssi)

Social Security Administration
1(800) 772-1213 (V)
1(800) 325-0778 (TTY)
1(800) 392-0812 (TTY; in MO)

Trauma

American Trauma Society
1(800) 556-7890 (V)

National Brain Injury Association
1(800) 444-6443 (V)

National Spinal Cord Injury Association
1(800) 962-9629 (V)

Vietnam Veterans/Agent Orange

Access Group for Children of Vietnam Veterans
1(800) 821-8580 (V)

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Credits

Update 1996
This list is made possible through Cooperative Agreement #H030A30003 between the Academy for Educational Development and the Office of Special Education Programs, U.S. Department of Education. The contents of this publication do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government.

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