Children With Disabilities: Understanding Sibling Issues

Bibliographic Note

Source

National Information Center
for Children and Youth with Disabilities

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You can obtain many of the documents listed below through your local public library. Whenever possible, we have included the publisher's address or some other source in case the publication is not available in your area. The organizations listed are only a few of the many that provide various services and information about siblings. Additional support is also available from state and local parent groups, as well as from state and local affiliates of major disability organizations. Please note that these addresses are subject to change without prior notice. If you experience difficulty in locating these documents or organizations, or if you would like additional assistance, please contact NICHCY, by writing to PO Box 1492, Washington, DC 20013, or by calling 1-800-695-0285 (V/TT) or (202) 884-8200 (V/TT).

If you know of a group providing support services for siblings and their families in your area, please send this information to NICHCY for our resource collection. We will appreciate this information and will share it with other families and professionals who request it.

References

Binkard, B. (1987). Brothers & sisters talk with PACER. Minneapolis: PACER Center. (Available from PACER Center, Inc., 4826 Chicago Ave., South, Minneapolis, MN 55417.)

Crnic, K. A., & Leconte, J. M. (1986). Understanding sibling needs and influences. In R. R. Fewell & P. F. Vadasy (Eds.), Families of handicapped children: Needs and supports across the life span (pp. 75-98). Austin: Pro-Ed. (This book is no longer in print but may be available through your public library.)

Dougan, T. (1983). Let the good times roll. In T. Dougan, L. Isbell, & P. Vyas (Eds.), We have been there (pp. 119-122). Nashville: Abingdon Press.

Featherstone, H. (1980). A difference in the family: Life with a disabled child. New York: Basic Books, Inc. (Available from Special Needs Project, 3463 State Street, Suite 282, Santa Barbara, CA 93105. Telephone: (805) 683-9633 or 1-800-333-6867.)

McHale, S. M., & Gamble, W. C. (1987). Sibling relationships and adjustment of children with disabled brothers and sisters. In F. Fuchs Schachter & R. K. Stine (Eds.), Practical concerns about siblings: Bridging the research-practice gap (pp. 131-158). New York: Haworth Press. (Available from Haworth Press, Inc., 10 Alice Street, Binghamton, NY 13904-1580. Telephone: 1-800-342-9678.)

McKeever, P. (1983). Siblings of chronically ill children: A literature review with implications for research and practice. American Journal of Orthopsychiatry, 53(2), 209-218.

Meyer, D. J., Vadasy P. F., & Fewell, R. R. (1985). Living with a brother or sister with special needs : A book for sibs. Seattle: University of Washington Press. (Available from University of Washington Press, P.O. Box 50096, Seattle, WA 98145-5095. Telephone: 1-800-441-4115.)

Powell, T. H., & Ogle, P. A. (1985). Brothers & sisters: A special part of exceptional families. Baltimore: Paul H. Brookes Publishing. (A second edition of this book is available from Paul H. Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21204. Telephone: 1-800-638-3775.)

Skrtic, T. M., Summers, J. A., Brotherson, M. J., & Turnbull, A. P. (1984). Severely handicapped children and their brothers and sisters. In J. Blancher (Ed.), Severely handicapped young children and their families: Research in review. New York: Academic Press. (Available from Academic Press, 6277 Sea Harbor Drive, Orlando, FL 32887. Telephone: 1-800-545- 2522.)

Bibliography (Updated 8/94)

General Interest:

Azarnoff, P. (1983). Health, illness, and disability: A guide to books for children and young adults. New York: R.R. Bowker. (Available from R.R. Bowker, c/o Reed Reference Publishing, 121 Chanlon Road, New Providence, NJ 07974. Telephone: 1-800- 521-8110.)

Corlin, M., Laughlin, J., & Saniga, R. (1991). Understanding abilities, disabilities, and capabilities: A guide to children's literature. Englewood, CO: Libraries Unlimited. (Available from Libraries Unlimited, P.O. Box 6633, Englewood, CO 80155-6633. Telephone: 1-800-237-6124.)

Emmett, M. (1989). I'm the big sister now. Niles, IL: Albert Whitman. (About a sibling of a child with cerebral palsy, suitable for pre-K through early elementary. Available from Albert Whitman, 6340 Oakton Street, Morton Grove, IL 60053. Telephone: 1-800-255- 7675.)

Epilepsy Foundation of America. (1992). Brothers and sisters: A guide for families of children with epilepsy. Landover, MD: Author. (Available from the Epilepsy Foundation of America, 4351 Garden City Drive, Landover, MD 20785. Telephone: 1-800-332-1000.)

Friedman, J.B., Mullins, J.B., & Sukiennik, A.W. (1985). Accept me as I am: Best books of juvenile nonfiction on impairment and disabilities. New York: R.R. Bowker. (Available from R.R. Bowker, at address listed above.)

Hecker, H. (1994). Children's disability bookstore catalog. Vancouver, WA: Twin Peaks. (Available from Twin Peaks Press, P.O. Box 129, Vancouver, WA 98666-0129. Telephone: (206) 694-2462.)

Lobato, D.J. (1990). Brothers, sisters, and special needs: Information and activities for helping young siblings of children with chronic illness and developmental disabilities. Baltimore, MD: Paul H. Brookes Publishing. (Available from Paul H. Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21204. Telephone: 1-800-638-3775.)

McCaffrey, F.D., & Fish, T. (1989). Profiles of the other child: A sibling guide for parents. Columbus, OH: Nisonger Center. (Available from the Nisonger Center, Publications Office, McCampbell Hall, Room 434, 1581 Dodd Drive, Columbus, OH 43210. Telephone: (614) 292-8365.)

Meyer, D. J., Vadasy, P. F., & Fewell, R. R. (1985). Living with a brother or sister with special needs: A book for sibs. Seattle: University of Washington Press. (Available from University of Washington Press, P.O. Box 50096, Seattle, WA 98145-5096. Telephone: 1-800-441-4115.)

Muldoon, K.M. (1989). Princess pooh. Niles, IL: Albert Whitman. (About a young girl and her sister who uses a wheelchair, suitable for pre-K through grade 3. See Albert Whitman address above.)

Powell, T., & Gallagher, P.A. (1993). Brothers and sisters: A special part of exceptional families (2nd ed.). Baltimore, MD: Paul H. Brookes. (See address above.)

Shulman, S. (1988). The family of the severely handicapped child: The sibling perspective. Journal of Family Therapy, 10(2), 125-134.

Thompson, M. (1992). My brother Matthew. Rockville, MD: Woodbine House. (Intended for siblings, grades K-5. Available from Woodbine House, 6510 Bells Mill Road, Bethesda, MD 20817. Telephone: 1-800-843-7323; (301) 897-3570.)

Magazines and Newsletters:

The Bond. A quarterly newsletter intended for siblings and adult children of individuals with mental illness. (For subscriptions, contact Siblings and Adult Children Network, National Alliance for the Mentally Ill, 200 N. Glebe Road, Suite 1015, Arlington, VA 222031. Telephone: (703) 524-7600.)

The Exceptional Parent. A magazine for parents of children with disabilities published twelve times a year. (Write: Psy-Ed Corporation, P.O. Box 3000, Denville, NJ 07834. Telephone: 1-800-562-1973.)

NASP Newsletter. A newsletter published for service providers. (Available from National Association of Sibling Programs, Sibling Support Project, Children's Hospital and Medical Center, P.O. Box 5371, CL-09, Seattle, WA 98105-0371. Telephone: (206) 368-4911.)

Sibling Information Network Newsletter. A newsletter for siblings, published quarterly. (Write: Sibling Information Network, A.J. Pappanikou Center, 62 Washington Street, Middletown, CT 06475. Telephone: (203) 344-7500.)

Organizations

The Sibling Information Network- A.J. Pappanikou Center, 62 Washington Street, Middletown, CT 06475. Telephone: (203) 344-7500. Siblings for Significant Change- 105 East 22nd St., New York, NY 10010. Telephone (212) 420-0430.

Parent Advocacy Coalition for Educational Rights (PACER) Center- PACER, is a Center of "parents helping parents". PACER's programs help parents and children become informed and participating members in the life of a child with disabilities. In addition to a resource listing of publications and a newsletter, PACER offers many workshops. Write: PACER Center, Inc., 4826 Chicago Ave. South, Minneapolis, MN 55417. Telephone: (612) 827-2966.

Siblings of Disabled Children- A program of Parents Helping Parents, offers two groups, one for ages 8-12, and one for ages 13-17. The objective is to give siblings special attention relating to their needs around being a member of an exceptional family. Their newsletter is called, Sibling Squabble. Write: Parents Helping Parents, Inc., 3041 Olcott, Santa Clara, CA 95054-3222. Telephone (408) 288-5010.

Sibling Support Project, Children's Hospital and Medical Center, P.O. Box 5371, CL-09, Seattle, WA 98105-0371.