Parenting A Child With Special Needs: A Guide To Readings And Resources

Organizations

Source

National Information Center
for Children and Youth with Disabilities

Contents

Forums

Related Articles

The organizations listed below are only a few of the many that provide services and information about disability issues to families. When calling or writing an organization, it is always a good idea to be as specific as you can in stating your needs and concerns. For example, state the gender and age of your child, the disability he or she has, and any special needs or interests you have in making your request. This helps organizations provide you with information that is truly helpful and on target.

Clearinghouses And Information Centers

ARCH National Resource Center for Crisis Nurseries and Respite Care Services, Chapel Hill Training Outreach Project, 800 Eastowne Drive, Suite 105, Chapel Hill, NC 27514. Telephone: (800) 473-1727; (800) 773-5433 (National Respite Locator Service); (919) 490-5577.

Communication and Information Services (formerly the Clearinghouse on Disability Information), Office of Special Education and Rehabilitative Services (OSERS), Room 3132, Switzer Building, 330 C Street S.W., Washington, DC 20202-2524. Telephone: (202) 205-8241.

ERIC Clearinghouse on Disabilities and Gifted Education, Council for Exceptional Children, 1920 Association Drive, Reston, VA 20191-1589. Telephone: (800) 328-0272; (703) 620-3660.

HEATH Resource Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities), One Dupont Circle N.W., Suite 800, Washington, DC 20036-1193. Telephone: 1-800-544-3284 (Voice/TTY, outside of DC area); (202) 939-9320 (in DC area).

National Center for Education in Maternal and Child Health, 2000 15th Street North, Arlington, VA 22201-2617. Telephone: (703) 524-7802.

National Center for Youth with Disabilities, University of Minnesota, Box 721, 420 Delaware Street S.E., Minneapolis, MN 55455. Telephone: (612) 626-2825; (612) 624-3939 (TTY).

National Health Information Center (ONHIC), P.O. Box 1133, Washington, DC 20013- 1133. Telephone: 1-800-336-4797; (301) 565-4167.

National Information Center on Deafness, Gallaudet University, 800 Florida Avenue N.E., Washington, DC 20002. Telephone: (202) 651-5051 (Voice); (202) 651-5052 (TTY).

National Rehabilitation Information Center (NARIC), 8455 Colesville Road, Suite 935, Silver Spring, MD 20910. Telephone: 1-800-346-2742 or 1-800-227-0216 (Voice/TTY); (301) 588-9284 (Voice/TTY in MD).

Research and Training Center on Family Support and Children's Mental Health, Portland State University, P.O. Box 751, Portland, OR 97207. Telephone: 1-800-628-1696; (503) 725-4040.

Technical Assistance to Parent Programs (TAPP) Network: National Office: Federation for Children with Special Needs, 95 Berkeley Street, Suite 104, Boston, MA 02116. Telephone: (617) 482-2915 (V/TTY).

Regional Offices: West Region - Washington State PAVE, 6316 South 12th Street, Tacoma, WA 98465. Telephone: (206) 565-2266; 1-800-572-7368 (toll-free in WA).

Midwest Region - PACER Center, 4826 Chicago Avenue South, Minneapolis, MN 55417. Telephone: (612) 827-2966 (V/TTY); in MN only, 1-800-537-2737 (V/TTY).

Northeast Region - Parent Information Center, P.O. Box 1422, Concord, NH 03302. Telephone: (603) 224-7005.

South Region - Exceptional Children's Assistance Center, P.O. Box 16, Davidson, NJ 28036. Telephone: 1-800-962-6817 (in NC); (704) 892-1321.

Government Agencies

Administration on Developmental Disabilities, U.S. Department of Health and Human Services, 200 Independence Avenue S.W., Room 329-D, Washington, DC 20201. Telephone: (202) 690-6590; (202)690-6415 (TTY).

National Council on Disability, 1331 F St. N.W., 10th Floor, Washington, DC 20004-1107. Telephone: (202) 272-2004; (202) 267-3232 (TTY).

Office of Indian Education Programs, Bureau of Indian Affairs (BIA), 1849 C Street N.W., MS-3512-MIB-OIE-23, Washington, DC 20240. Telephone: (202) 208-3596.

Other Organizations

The Arc (formerly the Association for Retarded Citizens of the United States), 500 East Border Street, Suite 300, Arlington, TX 76010. Telephone: 1-800-433-5255; (817) 261-6003.

Association for the Care of Children's Health, 7910 Woodmont Avenue, Suite 300, Bethesda, MD 20814-3015. Telephone: 1-800-808-ACCH; (301) 654-6549.

Association for Persons with Severe Handicaps (TASH), 29 W. Susquehanna Avenue, Suite 210, Baltimore, MD 21204. Telephone: (410) 828-8274; (410) 828-1306 (TTY).

Beach Center on Families and Disability, University of Kansas, 3111 Haworth Hall, Lawrence, KS 66045. Telephone: (913) 864-7600 (V/TTY).

Council for Exceptional Children, 1920 Association Drive, Reston, VA 20191-1589. Telephone: (703) 620-3660.

March of Dimes Birth Defects Foundation, 1275 Mamaroneck Avenue, White Plaines, NY 10605. Telephone: (914) 428-7100.

National Clearinghouse on Women and Girls with Disabilities, 114 East 32nd Street, Suite 701, New York, NY 10016. Telephone: (212) 725-1803.

National Parent Network on Disabilities, 1727 King Street, Suite 305, Alexandria, VA 22314. Telephone: (703) 684-6763.

Sibling Information Network, A.J. Pappanikou Center, University of Connecticut, 249 Glenbrook Road, U64, Storrs, CT 06269-2064. Telephone: (860) 486-5035.

Sick Kids (need) Involved People (SKIP), C/O SKIP of New York, 545 Madison Avenue, 13th Floor, New York, NY 10022. Telephone: (212) 421-9160.

Zero to Three/National Center for Infants, Toddlers and Families, 734 15th Street N.W., Suite 1000, Washington, DC 20005-1036. Telephone: (202) 638-1144; 1-800-899-4301 (Publications).

Disability-Specific Organizations

The list of all available disability-specific organizations is far too extensive to print in this News Digest. Many of these organizations are listed on NICHCY's disability fact sheets. Fact sheets are available on the following disabilities:

• Attention Deficit Disorder
• Autism & Pervasive Developmental Disorder
• Cerebral Palsy
• Deafness and Hearing Loss
• Down Syndrome
• Emotional Disturbance
• Epilepsy
• Learning Disabilities
• Mental Retardation
• Severe and/or Multiple Disabilities
• Speech and Language Impairments
• Spina Bifida
• Traumatic Brain Injury
• Visual Impairments

If you are interested in contacting a disability-specific organization that addresses the needs and concerns of individuals with one of these disabilities, please contact NICHCY and request the fact sheet of interest to you. The sheet will contain the names, addresses, and telephone numbers of organizations providing information and/or services regarding that particular disability.

If you have need of information on a disability that is not addressed through a NICHCY fact sheet, please contact NICHCY, and we will try to put you in contact with an organization that provides services and/or information about the disability of concern to you.