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Parenting A Child With Special Needs: A Guide To Readings And Resources

Resources



Credits


Source

National Information Center
for Children and Youth with Disabilities



Contents

You Are Not Alone

The Unplanned Journey

Supporting And Empowering The Family

Working With Professionals

Addressing Financial Concerns

Future Planning

Summary

References

Resources

Organizations

List Of Publishers and Journals


Forums

Learning and Other Disabilities


Related Articles

Rights and Responsibilities of Parents of Children With Disabilities

Educating Exceptional Children


The publications and organizations listed below, as well as the resources listed throughout this News Digest, are only a few of the many that can provide information to parents and families about issues related to disability. Additional support is also available from state and local parent groups, as well as from state and local affiliates of many major disability organizations.

Obtaining Resources That Interest You

To help you obtain documents listed in this issue, you will find the names, addresses, and telephone numbers of publishers at the end of this publication. The publisher's name generally appears in the final position in the citation -- to illustrate, in the example citation below, the publisher is Woodbine House.

Example:

Sweeney, W. (in press). The special-needs reading list: An annotated guide to the best publications for parents and professionals. Bethesda, MD: Woodbine House.

If you see the word "Author" in that final position instead of a publisher's name, the publisher and the author are one and the same. Look at the author's name (it will be the very first thing listed in the citation), find this name in the listing of publishers at the end of this News Digest, and use the contact information provided.


Print Materials: (not specific to a particular disability)

General Parent Readings

Algozzine, B., & Ysseldyke, J. (Eds.). (1995). Tactics for improving parenting skills. Longmont, CO: Sopris West.

Baker, B.L., & Brightman, A.J. (1997). Steps to independence: Teaching everyday skills to children with special needs (3rd ed.). Baltimore: Paul H. Brookes.

Beach Center on Families and Disability. (1994). Recognize and acknowledge family strengths (Fact Sheet 2F). Lawrence, KS: Author.

Beach Center on Families and Disability. (1996). Parent to parent: Annotated bibliography and literature review (Product No. 3P). Lawrence, KS: Author.

Beach Center on Families and Disability. (1997). Resources for families and people who work with families (Product No. Y4). Lawrence, KS: Author.

Callanan, C.R. (1990). Since Owen: A parent-to-parent guide for care of the disabled child. Baltimore, MD: Johns Hopkins University Press.

Capper, L. (1996). That's my child: Strategies for parents of children with disabilities. Washington, DC: Child Welfare League of America.

Cernoch, J. (1996). Respite care. NICHCY Briefing Paper, 1-8.

Dillon, A.D., Tashie, C., Shapiro-Barnard, S., Nisbet, J., Schuh, M., Dixon, B., & Zoellick, L. (1994). Daring to dream. Durham, NH: Institute on Disability.

Krahl, R. (1989). Rebuilding your dream: Family life with a disabled child. Iowa City, IA: University of Iowa.

Marsh, J.D.B. (Ed.). (1995). From the heart: On being the mother of a child with special needs. Bethesda, MD: Woodbine.

McAnaney, K.D. (1992). I wish: Dreams and realities of parenting a special needs child. Sacramento, CA: United Cerebral Palsy Associations, Inc.

McKenzie, L. (Ed.). (1996). Complete directory for people with disabilities, 1996/97. Lakeville, CT: Grey House Publishing.

Meyer, D.J. (Ed.). (1995). Uncommon fathers: Reflections on raising a child with a disability. Bethesda, MD: Woodbine.

Miller, N.B. (1994). Nobody's perfect: Living and growing with children who have special needs. Baltimore, MD: Paul H. Brookes.

Park, C.C. (1982). The siege: The first eight years of an autistic child with an epilogue, fifteen years after. Boston: Little, Brown.

Pueschel, S., Scola, P.S., Weidenman, L., & Bernier, J. (1995). The special child: A sourcebook for parents and children with developmental disabilities (2nd ed.). Baltimore: Paul H. Brookes.

Resources for Rehabilitation. (1996). Resources for people with disabilities and chronic conditions (3rd ed.). Lexington, MA: Author.

Ripley, S. (1990). A parent's guide to doctors, disabilities, and the family. McLean, VA: NICHCY.

Ripley, S. (1993). A parent's guide to parent groups. McLean, VA: NICHCY.

Rosenfeld, L.R. (1994). Your child and health care: A "dollars & sense" guide for families with special needs. Baltimore, MD: Paul H. Brookes.

Schwartz, S., & Miller, J.E.H. (1996). The new language of toys: Teaching communication skills to children with special needs: A guide for parents and teachers. Bethesda, MD: Woodbine.

Simon, R. (1987). After the tears: Parents talk about raising a child with a disability. Orlando, FL: Harcourt Brace Jovanovich.

Social Security Administration. (1996). Social Security: Benefits for children with disabilities (SSA Publication No. 05-10026). Baltimore, MD: Author. (This publication is being revised to reflect August 1996 changes in the law for children with disabilities. The revised edition will be available early in 1997.)

Sullivan, T. (1996). Special parent, special child: Parents of children with disabilities share their trials, triumphs, and hard-won wisdom. New York: Putnam Publishing Group.

Sweeney, W. (in press). The special-needs reading list: An annotated guide to the best publications for parents and professionals. Bethesda, MD: Woodbine.

Infants/Toddlers/Early Intervention Services

Beach Center on Families and Disability. (1994). Get a family-friendly IFSP (Fact Sheet 1I). Lawrence, KS: Author.

Beach Center on Families and Disability. (1995). Family-friendly IFSP research package (Product No. 2I). Lawrence, KS: Author.

Beach Center on Families and Disability. (1997). Parent handbook for individualized family service plans (Product No. 5I). Lawrence, KS: Author.

Brown, W., Thurman, S.K., & Pearl, L.F. (1993). Family-centered early intervention with infants and toddlers: Innovative cross-disciplinary approaches. Baltimore, MD: Paul H. Brookes.

Cantor, J.A., & Cantor, R.F. (1995). Parent's guide to special needs schooling: Early intervention years. Westport, CT: Greenwood.

Cripe, J.J.W. (Producer), & Crabtree, J. (Director). (1995). A family's guide to the individualized family service plan [video and booklet]. Baltimore, MD: Paul H. Brookes.

Harrison, H., & Kositsky, A. (1983). The premature baby book: A parents' guide to coping and caring in the first years. New York: St. Martin's.

Johnson, B.H., McGonigel, M.J., & Kaufmann, R.K. (1991). Guidelines and recommended practices for the Individualized Family Service Plan (2nd ed.). Bethesda, MD: Association for the Care of Children's Health.

Kupper, L. (Ed.). (1994). A parent's guide to accessing programs for infants, toddlers, and preschoolers with disabilities. Washington, DC: NICHCY.

Segal, M. (1988). In time and with love: Caring for the special needs baby. New York: Newmarket.

Widerstrom, A.H., Mowder, B.A., & Sandall, S.R. (1997). Infant development and risk: An introduction (2nd ed.). Baltimore, MD: Paul H. Brookes.

Parent/Professional Partnership

Leff, P.T., & Walizer, E.H. (1992). Building the healing partnership: Parents, professionals,a nd children with chronic illnesses and disabilities. Cambridge, MA: Brookline.

Turnbull, A.P., & Turnbull III, H.R. (1996). Families, professionals, and exceptionality: A special partnership (3rd ed.). Columbus, OH: Merrill.

Wilson, N.O. (1994). "My child needs special services" : Parents talk about what helps....and what doesn't. Bedford, MA: Mills & Sanderson.

Siblings And Grandparents

Ambler, L. (Ed.). (1988, Resources updated 1994). Children with disabilities: Understanding sibling issues. NICHCY News Digest, Number 11, 1-12.

Duncan, D. (1994). When Molly was in the hospital: A book for brothers and sisters of hospitalized children. Windsor, CA: Rayve Productions.

Epilepsy Foundation of America. (1992). Brothers and sisters: A guide for families of children with epilepsy. Landover, MD: Author.

Lobato, D.J. (1990). Brothers, sisters, and special needs: Information and activities helping young siblings of children with chronic illness and developmental disabilities. Baltimore: Paul H. Brookes.

McCaffrey, F.D., & Fish, T. (1989). Profiles of the other child: A sibling guide for parents. Columbus, OH: Nisonger Center.

Meyer, D.J., Vadasy, P.F., & Fewell, R.R. (1996). Living with a brother or sister with special needs: A book for sibs (2nd ed.). Seattle: University of Washington Press.

Pinkava, M.J. (1991). A handful of hope: Helpful suggestions for grandparents of children with disabilities. Phoenix, AZ: Pilot Parent Partnerships, Inc.

Powell, T., & Gallagher, P.A. (1993). Brothers and sisters: A special part of exceptional families (2nd ed.). Baltimore, MD: Paul H. Brookes.

Thompson, M. (1992). My brother Matthew. Rockville, MD: Woodbine. (Intended for siblings, grades K-5.)

Special Education And Related Services

Anderson, W., Chitwood, S., & Hayden, D. (in press). Negotiating the special education maze: A guide for parents and teachers (3rd ed.). Bethesda, MD: Woodbine.

Arena, J. (1989). How to write an I.E.P. (Rev. ed.). Novato, CA: Academic Therapy.

Beach Center on Families and Disability. (1996). Parent handbook for individualized education programs (Product No. 7I). Lawrence, KS: Author.

Cutler, B.C. (1993). You, your child, and "special" education: A guide to making the system work. Baltimore, MD: Paul H. Brookes.

Des Jardins, C. (1993). How to get services by being assertive. Chicago, IL: Family Resource Center on Disabilities.

Ferguson, S., & Ripley, S. (1991). Special education and related services: Communicating through letter writing. Parent's Guide, II(1), 1-20.

Giangreco, M.F., Cloninger, C.J., & Iverson, V.S. (1992). Choosing options and accommodations for children: A guide to planning inclusive education. Baltimore, MD: Paul H. Brookes.

Horne, R.L. (1996). The education of children and youth with special needs: What do the laws say? NICHCY News Digest, 1(1), 1-16.

Kapper, L. (Ed.). (1993). Questions and answers about the IDEA. NICHCY News Digest, 3(2), 1-16.

Larson, G. (Ed.). (1988). Managing the school-age child with a chronic health condition: A practical guide for schools, families, and organizations. Wayzata, MN: DCI Publishing.

Martin, R. (1991). Parents in the special education process (a 3-videotape series). Urbana, IL: Carle Center for Health Law and Ethics.

National Information Center for Children and Youth with Disabilities. (1994). Questions often asked about special education services. Washington, DC: Author.

Parent Advocacy Coalition for Educational Rights. (1996). Parents can be the key...to an appropriate education for their child with disabilities. Minneapolis: Author.

Pierangelo, R., & Jacoby, R. (1996). Parents' complete special education guide. Englewood Cliffs, NJ: Prentice-Hall.

Smith-Davis, J., & Littlejohn, W. (1991; Resources updated, 1995). Related services for school-aged children with disabilities. NICHCY News Digest, 1(2), 1-24.

Wilson, N.O. (1992). Optimizing special education: How parents can make a difference. New York: Insight Books.


Print Materials: (Specific Disabilities)

Asthma

Plaut, T.F. (1995). Children with asthma: A manual for parents (2nd ed.). Amherst, MA: Pedipress.

Plaut, T.F. (1996). One minute asthma: What you need to know (3rd ed.). Amherst, MA: Pedipress.

Sander, N. (1994). Parent's guide to asthma: How you can help your child control asthma at home, school, and play. New York: NAL-Dutton.

Attention-Deficit/Hyperactivity Disorder (ADHD)

Alexander-Roberts, C. (1994). ADHD parenting handbook: Practical advice for parents from parents: Proven techniques for raising hyperactive children without losing your temper. Dallas, TX: Taylor Publishing.

Dendy, C.A.Z. (1995). Teenagers with ADD: A parents' guide. Bethesda, MD: Woodbine.

Fowler, M.C. (1996). Maybe you know my kid: A parent's guide to identifying, understanding, and helping your child with ADHD (3rd ed.). New York: Birch Lane Press.

Fowler, M.C. (1994, October). Attention- deficit/hyperactivity disorder. NICHCY Briefing Paper, 1-16.

Hallowell, E.M., & Ratey, J.J. (1994). Driven to distraction: Recognizing and coping with attention deficit disorder from childhood through adulthood. New York: Pantheon Books.

Hallowell, E.M., & Ratey, J.J. (1995). Answers to distraction. New York: Pantheon Books.

Lynn, G.T. (1996). Survival strategies for parenting your ADD child. Grass Valley, CA: Underwood Books.

Moss, D. (1989). Shelley, the hyperactive turtle. Bethesda, MD: Woodbine. (Intended for children aged 4-8.)

Silver, L.B. (1993). Dr. Larry Silver's advice to parents on attention-deficit hyperactivity disorder. Columbia, MO: Hawthorne Educational Services.

Wodrich, D.L. (1994). What every parent wants to know: Attention deficit hyperactivity disorder. Baltimore, MD: Paul H. Brookes.

Autism

Brill, M.T. (1994). Keys to parenting the child with autism. Hauppauge, NY: Barron's Educational Series.

Dillon, K. (1995). Living with autism: The parents' stories. Boone, NC: Parkway Publishers.

Harris, S. (1994). Siblings of children with autism: A guide for families. Bethesda, MD: Woodbine.

Hart, C.A. (1993). A parent's guide to autism: Answers to the most common questions. New York: Pocket Books.

New Jersey Center for Outreach and Services for the Autism Community (COSAC). (1994, December). National directory of programs serving individuals with autism and related pervasive developmental disorders. Ewing, NJ: Author. (An updated edition of this directory is scheduled for release in March 1997.)

Powers, M.D. (Ed.). (1989). Children with autism: A parents' guide. Rockville, MD: Woodbine.

Wheeler, M., Rimstidt, S., Gray, S., & DePalma, V. (1990). Facts about autism. Bloomington, IN: Indiana Resource Center for Autism.

Cerebral Palsy

Geralis, E. (Ed.). (1991). Children with cerebral palsy: A parents' guide. Bethesda, MD: Woodbine.

Weiss, S. (1993). Each of us remembers: Parents of children with cerebral palsy answer your questions. Washington, DC: United Cerebral Palsy Associations, Inc.

Deafness/Hearing Impairment

Gross, C.W., & Gravel, J. (1995). A guide to your child's hearing. Washington, DC: Better Hearing Institute.

Independence through telecommunications: A guide for parents of deaf and hard of hearing children. (1994). Washington, DC: Gallaudet University.

Luterman, D.M. (1991). When your child is deaf: A guide for parents. Parkton, MD: York Press.

Medwid, D.J., & Weston, D.C. (1995). Kid-friendly parenting with deaf and hard of hearing children: A treasury of fun activities toward better behavior. Washington, DC: Gallaudet University Press.

National Information Center on Deafness. (1993). Books for parents of deaf and hard of hearing children. Washington, DC: Author. (This publication is being revised and an updated edition will be released in 1997.)

National Information Center on Deafness. (1991). Growing together: Information for parents of deaf and hard of hearing children (Product #569). Washington, DC: Author.

Ogden, P.W. (1996). The silent garden: Raising your deaf child (Rev. ed.). Washington, DC: Gallaudet University Press.

Riski, M.C. & Klakow, N. (1994). Patrick gets hearing aids. Naperville, IL: Phonak.

Schwartz, S. (Ed.). (1996). Choices in deafness: A parents' guide to communication options (2nd ed.). Bethesda, MD: Woodbine.

Down Syndrome

Brill, M.T. (1993). Keys to parenting a child with Down syndrome. Hauppauge, NY: Barron's Educational Series.

Cunningham, C. (1996). Understanding Down syndrome: An introduction for parents. Cambridge, MA: Brookline.

Kumin, L. (1994). Communication skills in children with Down syndrome: A guide for parents. Bethesda, MD: Woodbine.

Oelwin, P.L. (1995). Teaching reading to children with Down syndrome: A guide for parents and teachers. Bethesda, MD: Woodbine.

Pueschel, S.M. (Ed.). (1990). A parent's guide to Down syndrome: Toward a brighter future. Baltimore, MD: Paul H. Brookes.

Rynders, J.E., & Horrobin, J.M. (1996). Down syndrome -- birth to adulthood: Giving families an EDGE. Denver, CO: Love.

Stray-Gundersen, K. (Ed.). (1995). Babies with Down syndrome: A new parents' guide (2nd ed.). Bethesda, MD: Woodbine.

Trainer, M. (1991). Differences in common: Straight talk on mental retardation, Down syndrome, and life. Bethesda, MD: Woodbine.

Van Dyke, V., Mattheis, P., Eberly, S., & Williams, J. (Eds.). (1995). Medical and surgical care for children with Down syndrome: A guide for parents. Bethesda, MD: Woodbine.

Emotional Or Behavioral Disorders

Adamec, C. (1996). How to live with a mentally ill person: A handbook of day-to-day strategies. New York: John Wiley & Sons.

Beach Center on Families and Disability. (1994). Positive behavioral support as a means to enhance successful inclusion for persons with challenging behavior (Product No. 4S). Lawrence, KS: Author.

Beach Center on Families and Disability. (1995). What research says: Understanding challenging behavior and teaching new skills (Product No. 8S). Lawrence, KS: Author.

Bush, R. (1994). Parent's guide to child therapy. Northvale, NJ: Aronson.

Hatfield, A.B., & Lefley, H.P. (1993). Surviving mental illness: Stress, coping, and adaptation. New York: Guilford.

Ingersool, B., & Goldstein, S. (1996). Lonely, sad and angry: A parents' guide to depression in children and adolescents. New York: Doubleday.

Jordan, D. (1995). Honorable intentions: A parent's guide to educational planning for children with emotional or behavioral disorders. Minneapolis, MN: PACER Center.

Koegel, L.K., Koegel, R.L., & Dunlap, G. (Eds.). (1996). Positive behavioral support: Including people with difficult behavior in the community. Baltimore, MD: Paul H. Brookes.

National Alliance for the Mentally Ill. (1996). Resource catalog: A listing of resources from the National Alliance for the Mentally Ill (Rev. ed.). Arlington, VA: Author.

Paquette, P., & Tuttle, C.G. (1996). Parenting a child with a behavior problem: A practical and empathetic guide. Los Angeles, CA: Lowell House.

Epilepsy

Devinsky, O. (1994). A guide to understanding and living with epilepsy. Philadelphia, PA: F.A. Davis Company.

Ellis, G.J., & Trusz-Parks, S. (1993). Epilepsy: Parent and family networks resource manual. Landover, MD: Epilepsy Foundation of America.

Freeman, J.M., Vining, E.P.G., & Pillas, D.J. (1993). Seizures and epilepsy in childhood: A guide for parents (Rev. ed.). Baltimore, MD: John Hopkins University Press.

Moss, D. (1989). Lee, the rabbit with epilepsy. Rockville, MD: Woodbine. (Intended for children aged 4-8.)

Reisner, H. (Ed.). (1988). Children with epilepsy: A parents' guide. Bethesda, MD: Woodbine.

Learning Disabilities

Cummings, R., & Fisher, G. (1993). The survival guide for teenagers with LD (learning differences). Minneapolis, MN: Free Spirit.

Dunn, K.B., & Dunn, A.B. (1993). Trouble with school: A family story with learning disabilities. Bethesda, MD: Woodbine. (Intended for students in grades 1-5 and their parents.)

Huston, A.M. (1992). Understanding dyslexia. Lanham, MD: Madison Books.

Kratoville, B.L. (Ed.). (1996). Directory of facilities and services for the learning disabled (16th ed.). (1996). Novato, CA: Academic Therapy. (The 17th edition is scheduled for release in Spring 1997.)

Kupper, L. (Ed.). (1995). Reading and learning disabilities: A resource guide. NICHCY Briefing Paper, 1-16.

Lab School of Washington. (1991). Issues of parenting children with learning disabilities [audiotape series of 12 lectures]. Washington, DC: Author.

Silver, L.B. (1991). The misunderstood child: A guide for parents of children with learning disabilities (2nd ed.). New York: McGraw Hill.

Smith, S.L. (1996). No easy answers: The learning disabled child at home and at school (Rev. ed.). New York: Bantam.

Tuttle, C.G., & Paquette, P. (1995). Parenting children with learning disabilities. New York: Doubleday.

Mental Retardation

Smith, R. (Ed.). (1993). Children with mental retardation: A parent's guide. Bethesda, MD: Woodbine.

Trainer, M. (1991). Differences in common: Straight talk on mental retardation, Down syndrome, and life. Bethesda, MD: Woodbine.

Medical Books

Batshaw, M.L. (1991). Your child has a disability: A complete sourcebook of daily and medical care. Boston, MA: Little, Brown.

Batshaw, M.L., & Perret, Y.M. (1993). Children with disabilities: A medical primer (3rd ed.). Baltimore, MD: Paul H. Brookes. (A fourth edition of this book is scheduled for release in July 1997.)

Physical Disabilities

Albrecht, D.G. (1995). Raising a child who has a physical disability. Somerset, NJ: John Wiley & Sons.

Introduction to spinal cord injury: Understanding the changes. (1995). Washington, DC: Paralyzed Veterans of America.

Lutkenhoff, M., & Oppenheimer, S. (1997). SPINAbilities: A young person's guide to spina bifida. Bethesda, MD: Woodbine.

Spina Bifida Center. (1995). Medical facts about spina bifida. Baltimore, MD: Author.

Visual Impairment

American Foundation for the Blind. (1993). AFB directory of services for blind and visually impaired persons in the United States and Canada (24th ed.). New York, NY: Author.

Blakely, K., Lang, M.A., Kushner, B., & Iltus, S. (1995). Toys and play: A guide to fun and development for children with impaired vision. Long Island City, NY: Lighthouse Industries.

Blind Children's Center. (1986). Heart to heart. Los Angeles, CA: Author.

Ferrell, K.A. (1996). Reach out and teach: Meeting the training needs of parents of visually and multiply handicapped young children (Item 2084). New York: American Foundation for the Blind.

Holbrook, M.C. (Ed.). (1996). Children with visual impairments: A parents' guide. Bethesda, MD: Woodbine.

National Library Service for the Blind and Physically Handicapped. (1996, January). Blindness and visual impairments: Information and advocacy organizations (Reference Circular No. 96-01). Washington, DC: Library of Congress.

Scott, E., Jan, J., & Freeman, R. (1995). Can't your child see? (2nd ed.). Austin, TX: Pro-Ed.

Other Disabilities

Balog, D. (Ed.). (1997). Brain connections: Your source guide to information on brain diseases and disorders (2nd ed.). Washington, DC: Dana Alliance for Brain Initiatives.

Berkowitz, S. (1994). The cleft palate story: A primer for parents of children with cleft lip and palate. Chicago, IL: Quintessence.

Bock, G.H. (1993). Parent's guide to kidney disorders. Minneapolis, MN: University of Minnesota Press.

Brewer, E.J., & Angel, K.C. (1992). Parenting a child with arthritis: A practical, empathetic guide to help you and your child live with arthritis. Los Angeles: Lowell House.

Charkins, H. (1996). Children with facial difference: A parents' guide. Bethesda, MD: Woodbine.

Costin, C. (1996). Eating disorder sourcebook: Everything you need to know about anoexia, bulimia, and other eating disorders. Los Angeles, CA: Lowell House.

Fisher, G.C., Komarofs, A.L., Cheney, P.R., Gantz, N.M., Klonofs, D., & Oleske, J.M. (1997). Chronic fatigue syndrome: A comprehensive guide to symptoms, treatments, and solving the practical problems of CFS. New York: Warner Books.

Glauswer, H.C. (Ed.). (1995). Living with osteogenesis imperfecta: A guidebook for families. Tampa, FL: Osteogenesis Imperfecta Foundation.

Haerle, T. (Ed.). (1992). Children with Tourette syndrome: A parents' guide. Rockville, MD: Woodbine.

Hughes, B.K. (1990). Parenting a child with traumatic brain injury. Springfield, IL: Charles C. Thomas.

Jones, M.L. (1985). Home care for the chronically ill or disabled child: A manual and sourcebook for parents and professionals. New York: Harper & Row.

Lewis, K.S. (1994). Successful living with chronic illness: Celebrating the joys of life. Dubuque, IA: Kendall/Hunt Publishing.

Loring, G. (1993). Parenting a child with diabetes: A practical, empathetic guide to help you and your child live with diabetes. Los Angeles: Lowell House.

Maddox, S. (1994). Spinal network: The total resource for the wheelchair community (2nd ed.). Boulder, CO: Spinal Network.

Martins, S. (1993). Reading too soon: How to understand and help the hyperlexic child. Elmhurst, IL: Center for Speech and Language.

Moller, K.T., Starr, C.D., & Johnson, S.A. (1991). A parents guide to cleft lip and palate. Minneapolis, MN: University of Minnesota Press.

National Institute on Deafness and Other Communication Disorders Information Clearinghouse. (1994). Because you asked about smell and taste disorders 1994. Bethesda, MD: Author.

National Institute on Deafness and Other Communication Disorders Information Clearinghouse. (1996). Language disorders resources 1996. Bethesda, MD: Author.

National Institute on Deafness and Other Communication Disorders Information Clearinghouse. (1996). Voice disorders resources 1996. Bethesda, MD: Author.

National Rehabilitation Information Center. (1994). Traumatic brain injury: A NARIC resource guide for people with TBI and their families. Silver Spring, MD: Author.

Orto, A.D., & Power, P. (1994). Head injury and the family: A life and living perspective. Delray Beach, FL: St. Lucie Press.

Rustin, L. (1991). Parents, families, and the stuttering child. San Diego, CA: Singular.

Welsh, L., & Betancourt, M. (1996). Chronic illness and the family: A guide to living every day. Holbrook, MA: Adams Publishing.


Magazines And Newsletters

Coalition Quarterly - Technical Assistance for Parent Programs (TAPP) Network, Federation for Children with Special Needs, 95 Berkeley Street, Suite 104, Boston, MA 02116. Telephone: 1-800-331-0688 (in MA); (617) 482-2915. Published quarterly, free.

Exceptional Children - Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091-1589. Telephone: (703) 620-3660. Published 4 times a year. Non-members, $45.00; Members, $14.00.

Exceptional Parent - Exceptional Parent Magazine, 555 Kinderkamack Road, Oradell, NJ 07649-1517. Published 12 times a year. Cost: $32.00. New subscriptions, call: 1-800-247-8080.

Families and Disability Newsletter - Beach Center on Families and Disability, University of Kansas, 3111 Haworth Hall, Lawrence, KS 66045. Telephone: (913) 864-7600. Published 3 times a year, free.

NASP Newsletter - National Association of Sibling Programs, Sibling Support Project, Childrens Hospital and Medical Center, P.O. Box 5371, CL-09, Seattle, WA 98105-0371. Telephone: (206) 368-4911. Published twice a year, for service providers.

Sibling Information Network Newsletter - Sibling Information Network, A.J. Pappanikou Center, University of Connecticut, 249 Glenbrook Road, U64, Storrs, CT 06269-2064. Telephone: (860) 486-5035. Published several times a year. For members, $8.50; Organizations, $15.00.

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