Parenting A Child With Special Needs: A Guide To Readings And Resources

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National Information Center
for Children and Youth with Disabilities

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Ambler, L. (Ed.). (1988). Children with disabilities: Understanding sibling issues. NICHCY News Digest, Number 11, 1-12.

Behr, J. (1991). [Testimony on early intervention.] In U.S. Senate, Senate report to accompany S. 1106. Washington, DC: GPO.

Blacher, J. (1989). Sequential stages of parental adjustment to the birth of a child with handicaps: Fact or artifact? In B.E. Hanft (Ed.), Family centered care. Rockville, MD: American Occupational Therapy Association.

Bradford, T.H. (1991). Say that again, please! Insights in dealing with hearing loss. Dallax, TX: Author.

Callahan, C.R. (1990). Since Owen: A parent-to-parent guide to care of the disabled child. Baltimore, MD: John Hopkins University Press.

Cernoch, J. (1989). Respite care: A gift of time. NICHCY News Digest, Number 12, 1-12.

Clark, J., & Manes, J. (1992). The advocate's guide to SSI for children. Washington, DC: Mental Health Law Project. (A second edition of this guide, published in 1995, is now available. A third edition, incorporating recent changes in welfare law, will be released sometime in 1997.)

Coleman, R. (1990, April). [Unpublished remarks]. Washington, DC: The George Washington University.

Dickson, I.R. (1989). The parent-professional partnership: A parent's perspective. In J.M. Levy, P.H. Levy, & B. Nivin (Eds.), Strengthening families: New directions in providing services to people with developmental diabilities and their families. New York: Young Adult Institute and Workshop, Inc.

Dickman, I.R. (1993). One miracle at a time: Getting help for a child with a disability (rev. ed.). New York: Simon & Schuster. (This book has gone out of print but may be available through your public or university library.)

Featherstone, H. (1980). A difference in the family: Life with a disabled child. New York: Basic Books.

Fewell, R.R., & Vadasy, P.F. (1986). Families of handicapped children: Needs and supports across the life span. Austin, TX: Pro-Ed. (This book has gone out of print but may be available through your public or university library.)

Finston, P. (1990). Parenting plus: Raising children with special health needs. New York: Dutton. (This book has gone out of print but may be available through your public or university library.)

Krahl, R. (1989). Rebuilding your dream: Family life with a disabled child. Iowa City, IA: University of Iowa.

Krementz, J. (1992). How it feels to live with a physical disability. New York: Simon & Schuster. (This book has gone out of print but may be available through your public or university library.)

Kriegsman, K.H., Zaslow, E.L., & D'Zmura-Rechsteiner, J. (1992). Taking charge: Teenagers talk about life and physical disabilities. Rockville, MD: Woodbine House.

Lamb, M.E. (1976). Fathers and child development: An integrative overview. In M.E. Lamb (Ed.), The role of the father in child development. New York: John Wiley and Sons. (This book has gone out of print but may be available through your public or university library.)

Levin, T. (1992). Rainbow of hope: A guide for the special needs child. North Miami Beach, FL: Starlight. (This book has gone out of print but may be available through your public or university library.)

Lobato, D.J. (1990). Brothers, sisters, and special needs. Baltimore, MD: Paul H. Brookes.

Mahoney, G., O'Sullivan, P., & Robinson, C. (1992). The family environment of children with disabilities: Diverse but not so different. Topics in Early Childhood Special Education, 12(3), 386-402.

McAnaney, K.D. (1992). I wish: Dreams and realities of parenting a special needs child. Sacramento, CA: United Cerebral Palsy Associations, Inc.

McBride, S., Brotherson, M.J., Joanning, H., Whiddon, D., & Demmit, A. (1992). Implementation of family centered services: Perceptions of professionals and families. Unpublished manuscript, Human Development and Family Studies, Iowa State University, Iowa.

McLaughlin, M.J. (1993). Promising practices and future directions for special education. NICHCY News Digest, 2(2), 1-24.

Moore, C. (1990). A reader's guide for parents of children with mental, physical, or emotional disabilities (3rd ed.). Rockville, MD: Woodbine. (This book has gone out of print but may be available through your local library. A new version is scheduled for release mid-year 1997. See reference for Sweeney.)

Moore, C. (1993). Maximizing family participation in the team process. In L. Kupper (Ed.), Second National Symposium on Effective Communication for Children and Youth with Severe Disabilities: Topic papers, reader's guide, and videotape (pp. 43-54). McLean, VA: Interstate Research Associates.

Park, C. (1988). The siege: The first eight years of an autistic child with an epilogue, fifteen years later. Boston, MA: Little, Brown.

Peck, C.A., Odom, S.L., & Bricker, D.D. (1993). Integrating young children with disabilities into community programs: Ecological perspectives on research and implementation. Baltimore, MD: Paul H. Brookes.

Powell, T., & Gallagher, P.A. (1993). Brothers and sisters: A special part of exceptional families (2nd ed). Baltimore, MD: Paul H. Brookes.

Ramirez, C. (1993, April 19). [Unpublished panelist remarks]. In A. Turnbull (Leader), Forum on future directions: Visions and strategies for family-researcher collaboration. Forum conducted at the annual meeting of the Council for Exceptional Children, San Antonio, TX.

Routburg, M. (1986). On becoming a special parent: A mini-support group in a book. Chicago, IL: Parent/Professional Publications. (This book has gone out of print but may be available through your public or university library.)

Seligman, M., & Darling, R.B. (1989). Ordinary families, special children: A systems approach to childhood disability. New York: Guilford Press. (A second edition of this book, published in 1992, is now available.)

Shelton, T., Jeppson, E., & Johnson, B. (1989, June). Family centered care for children with special health needs. Washington, DC: Association for the Care of Children's Health. (A third edition of this book, published in 1994, is now available.)

Sutton, B. (1982). A mother's view. Clinical proceedings. Children's Hospital National Medical Center. The Child with Spina Bifida: II Psychological, Educational, and Family Concerns, 38(4), 213. [As cited in Pueschel, S., Bernier, J., & Weidenman, L. (1988). The special child: A sourcebook for parents and children with developmental disabilities (pp. 16-17). Baltimore, MD: Paul H. Brookes.] (This book has gone out of print but may be available through your public or university library.)

Thompson, C.E. (1986). Raising a handicapped child: A helpful guide for parents of the physically disabled. New York: Ballantine Books. (This book has gone out of print but may be available through your public or university library.)

Wandry, D., & Repetto, J. (1993, March). Transition services in the IEP. NICHCY Transition Summary, 1-28.

Wickler, L., Wasow, M., & Hatfield, E. (1981). Chronic sorrow revisited: Parent vs. professional depiction of the adjustment of parents of mentally retarded children. American Journal of Orthopsychiatry, 51, 63-70.