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National Resources |
CreditsSourceNational Information Centerfor Children and Youth with Disabilities ContentsClearinghousesOrganizations ForumsLearning and Other DisabilitiesRelated ArticlesGeneral Information about Severe and/or Multiple DisabilitiesA Guide to Children's Literature and Disability |
ClearinghousesCommunication and Information Services(Formerly Clearinghouse on Disability Information) Office of Special Education and Rehabilitative Services Room 3132, Switzer Building 330 C Street S.W. Washington, DC 20202-2524 (202) 205-8241 (Voice/TTY) DB-LINK National Information Clearinghouse on Children Who Are Deaf-Blind 345 N. Monmouth Avenue Monmouth, OR 97361 (800) 438-9376 (Voice); (800) 854-7013 (TTY) E-mail: dblink@tr.wou.edu URL: http://www.tr.wou.edu/dblink/ ERIC Clearinghouse on Disabilities and Gifted Education Council for Exceptional Children (CEC) 1920 Association Drive Reston, VA 20191-1589 (800) 328-0272 (Voice); (703) 264-9449 (TTY) E-mail: ericec@cec.sped.org URL: http://www.cec.sped.org/ericec.htm HEATH Resource Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities) One Dupont Circle, N.W., Suite 800 Washington, D.C. 20036-1193 (800) 544-3284; (202) 939-9320 (Voice/TTY) E-mail: heath@ace.nche.edu URL: http://ace-info-server.nche.edu/Programs/HEATH/home.html National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse 1 AMS Circle Bethesda, MD 20892-3675 (301) 495-4484 (Voice); (301) 565-2966 (TTY) URL: http://www.nih.gov/niams National Clearinghouse for Professions in Special Education Council for Exceptional Children 1920 Association Drive Reston, VA 20191-1589 (800) 641-7824; (703) 264-9474 (Voice) (703) 264-9480 (TTY) E-mail: ncpse@cec.sped.org URL: http://www.cec.sped.org/cl-menu.htm National Health Information Center P.O. Box 1133 Washington, D.C. 20013-1133 (800) 336-4797; (301) 565-4167 E-mail: nhicinfo@health.org URL: http://nhic-nt.health.org/ National Information Center on Deafness (NICD) Gallaudet University 800 Florida Avenue, N.E. Washington, D.C. 20002-3695 (202) 651-5051 (Voice); (202) 651-5052 (TTY) Publications available in Spanish E-mail: nicd@gallux.gallaudet.edu URL: http://www.gallaudet.edu/~nicd National Maternal and Child Health Clearinghouse 2070 Chain Bridge Road, Suite 450 Vienna, VA 22182-2536 (703) 821-8955, ext. 254 or 265 E-mail: nmchc@circsol.com Publications available in Spanish Spanish speaker on staff National Organization for Rare Disorders (NORD) 100 Route 37, P.O. Box 8923 New Fairfield, CT 06812-8923 (800) 999-6673; (203) 746-6518 (Voice) (203) 746-6927 (TTY) E-mail: orphan@nord-rdb.com URL: http://www.nord-rdb.com/~orphan National Rehabilitation Information Center (NARIC) 8455 Colesville Road, Suite 935 Silver Spring, MD 20910-3319 (800) 346-2742; (301) 588-9284 (Voice) (301) 495-5626 (TTY) Spanish speaker on staff URL: http://www.naric.com/naric Research and Training Center on Family Support and Children's Mental Health Portland State University P.O. Box 751 Portland, OR 97207-0751 (800) 628-1696; (503) 725-4040 (Voice) (503) 725-4165 (TTY) E-mail: stepheb@rri.pdx.edu URL: http://www.rtc.pdx.edu/ Back to the Table of Contents |
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OrganizationsAlexander Graham Bell Association for the Deaf3417 Volta Place N.W. Washington, DC 20007 (202) 337-5220 (Voice/TTY) E-mail: agbell2@aol.com URL: http://www.agbell.org Alliance for Technology Access 2175 East Francisco Boulevard, Suite L San Rafael, CA 94901 (800) 455-7970; (415) 455-4575 (Voice) (415) 455-0491 (TTY) E-mail: atainfo@ataccess.org URL: http://www.ataccess.org Alliance of Genetic Support Groups 35 Wisconsin Circle, Suite 440 Chevy Chase, MD 20815 (800) 336-4363; (301) 652-5553 E-mail: alliance@capaccess.org URL: http://medhlp.netusa.net/www/agsg.htm American Council on Rural Special Education (ACRES) Department of Special Education University of Utah Milton Bennion Hall, Room 221 Salt Lake City, UT 84112 (801) 585-5659 E-mail: acres@gsu.utah.edu American Foundation for the Blind (AFB) 11 Penn Plaza, Suite 300 New York, NY 10001 (800) 232-5463; (212) 502-7600 (Voice) (212) 502-7662 (TTY) Publications available in Spanish E-mail: afbinfo@afb.org URL: http://www.afb.org/afb American Occupational Therapy Association (AOTA) 4720 Montgomery Lane P.O.Box 31220 Bethesda, MD 20824-1220 (301) 652-2682 (Voice); (800) 377-8555 (TTY) URL: http://www.etown.edu/home/ot/aota.htm American Physical Therapy Association (APTA) 1111 North Fairfax Street Alexandria, VA 22314 (800) 999-2782; (703) 684-2782 (Voice) (703) 683-6748 (TTY) E-mail: mailto:practice@apta.org URL: http://www.apta.org American Speech-Language-Hearing Association (ASHA) 10801 Rockville Pike Rockville, MD 20852 (800) 638-8255; (301) 897-5700 (Voice/TTY) E-mail: webmaster@asha.org URL: http://www2.asha.org/asha/ American Therapeutic Recreation Association P.O. Box 15215 Hattiesburg, MS 39404-5215 (601) 264-3413 E-mail: atra@accessnet.com URL: http://www.atra-tr.org Anorexia Nervosa and Related Eating Disorders, Inc. P.O. Box 5102 Eugene, OR 97405 (541) 344-1144 URL: http://www.anred.com Aplastic Anemia Foundation of America, Inc. PO Box 613 Annapolis, MD 21404 (800) 747-2820 (410) 867-0242 E-mail: aafacenter@aol.com URL: http://www.teleport.com/nonprofit/aafa The Arc (formerly the Association for Retarded Citizens of the U.S.) 500 E. Border Street, Suite 300 Arlington, TX 76010 (800) 433-5255; (817) 261-6003 (Voice) (817) 277-0553 (TTY) E-mail: thearc@metronet.com URL: http://thearc.org/welcome.html ARCH National Resource Center for Respite and Crisis Care Services Chapel Hill Training-Outreach Project 800 Eastowne Drive, Suite 105 Chapel Hill, NC 27514 (800) 473-1727 (Voice) (800) 773-5433 (National Respite Locator Service) (919) 490-5577 (Voice) E-mail: HN4735@connectinc.com URL: http://chtop.com/archbroc.htm Association for the Advancement of Rehabilitation Technology (RESNA) 1700 N. Moore Street, Suite 1540 Arlington, VA 22209-1903 (703) 524-6686 (Voice); (703) 524-6639 (TTY) E-mail: natloffice@resna.org URL: http://www.resna.org/resna/reshome.htm Association for the Care of Children's Health (ACCH) 7910 Woodmont Avenue, Suite 300 Bethesda, MD 20814-3015 (800) 808-2224; (301) 654-6549 (Voice) E-mail: acch@clark.net URL: http://ww.ACCH.org/ACCH/ Association for Persons with Severe Handicaps (TASH) 29 W. Susquehanna Ave., Suite 210 Baltimore, MD 21204 (410) 828-8274 (Voice); (410) 828-1306 (TTY) E-mail: info@tash.org URL: http://www.tash.org Attention Deficit Disorder Association (ADDA) P.O. Box 972 Mentor, OH 44061 (216) 350-9595 (800) 487-2282 (To request information packet) E-mail: NATLADDA@aol.com URL: http://www.add.org Autism Society of America (formerly NSAC) 7910 Woodmont Avenue, Suite 650 Bethesda, MD 20814-3015 (800) 3-AUTISM; (301) 657-0881 (Voice) Fact sheet available in Spanish URL: http://www.autism-society.org Brain Injury Association (formerly the National Head Injury Foundation) 1776 Massachusetts Ave., N.W., Suite 100 Washington, D.C. 20036 (202) 296-6443 Publications available in Spanish URL: http://www.biausa.org Children and Adults with Attention Deficit Disorders (CH.A.D.D.) 499 NW 70th Avenue, Suite 101 Plantation, FL 33317 (954) 587-3700 (800) 233-4050 (To request information packet) URL: http://www.chadd.org Council for Exceptional Children (CEC) 1920 Association Drive Reston, VA 20191-1589 (703) 620-3660 (Voice); (703) 264-9446 (TTY) E-mail: cec@cec.sped.org URL: http://www.cec.sped.org/home.htm Disability Rights and Education Defense Fund 2212 Sixth Street Berkeley, CA 94710 (510) 644-2555 (Voice); (510) 644-2626 (TTY) E-mail: dredf.pa@aol.com Disability Statistics Rehabilitation, Research and Training Center Institute for Health and Aging Box 0646 Laurel Heights, UCSF San Francisco, CA 94143-0646 (415) 502-5210 (Voice); (415) 502-5217 (TTY) E-mail: information_specialist@quickmail.ucsf.edu URL: http://dsc.ucsf.edu Epilepsy Foundation of America (EFA) 4351 Garden City Drive, 5th Floor Landover, MD 20785-4941 (800) 332-1000; (301) 459-3700 Publications available in Spanish Spanish speaker on staff E-mail: postmaster@efa.org URL: http://www.efa.org Family Resource Center on Disabilities 20 East Jackson Boulevard, Room 900 Chicago, IL 60604 (800) 952-4199 (Voice/TTY; toll-free in IL only) (312) 939-3513 (Voice); (312) 939-3519 (TTY) Family Village (a global community of disability-related resources) Waisman Center University of Wisconsin-Madison 1500 Highland Avenue Madison, WI 53705-2280 URL: http://www.familyvillage.wisc.edu/ Family Voices PO Box 769 Algodones, NM 87001 (505) 867-2368 E-mail: famv01rw@wonder.em.cdc.gov URL: http://www.ichp.ufl.edu/MCH-NetLink/FamilyVoices/ Head Start Bureau Administration on Children, Youth and Families U.S. Department of Health & Human Services P.O. Box 1182 Washington, D.C. 20013 (202) 205-8579 Hydrocephalus Association 870 Market Street #955 San Francisco, CA 94102 (415) 732-7040 E-mail: hydroassoc@aol.com URL: http://neurosurgery.mgh.harvard.edu/ha/ Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX 77019 (713) 520-0232 (Voice); (713) 520-5136 (TTY) E-mail: ilru@bcm.tmc.edu URL: http://www.bcm.tmc.edu/ilru International Resource Center for Down Syndrome Keith Building 1621 Euclid Avenue, Suite 514 Cleveland, OH 44115 (216) 621-5858; (800) 899-3039 (toll-free in OH only) E-mail: hf854@cleveland.freenet.edu International Rett Syndrome Association 9121 Piscataway Rd., Suite 2B Clinton, MD 20735-2561 (800) 818-7388; (301) 856-3334 E-mail: irsa@paltech.com URL: http://www2.paltech.com/irsa/irsa.htm Learning Disabilities Association of America (LDA) (formerly ACLD) 4156 Library Road Pittsburgh, PA 15234 (412) 341-1515; (412) 341-8077 Publications available in Spanish E-mail: ldanatl@usaor.net URL: http://www.ldanatl.org March of Dimes Birth Defects Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 (914) 428-7100 Publications available in Spanish Spanish speaker on staff E-mail: resourcecenter@modimes.org URL: http://www.modimes.org Muscular Dystrophy Association (MDA) 3300 East Sunrise Drive Tucson, AZ 85718 (800) 572-1717; (520) 529-2000 Publications available in Spanish Spanish speaker on staff E-mail: mda@mdausa.org URL: http://www.mdausa.org National Alliance for the Mentally Ill (NAMI) 200 N. Glebe Rd., Suite 1015 Arlington, VA 22203-3754 (800) 950-NAMI; (703) 524-7600 E-mail: namiofc@aol.com URL: http://www.nami.org National Association of Private Schools for Exceptional Children (NAPSEC) 1522 K Street N.W., Suite 1032 Washington, DC 20005 (202) 408-3338 E-mail: NAPSEC@aol.com URL: http://www.spedschools.com/napsec.html National Association of Protection and Advocacy Systems (NAPAS) 900 Second Street N.E., Suite 211 Washington, DC 20002 (202) 408-9514 (Voice); (202) 408-9521 (TTY) E-mail: hn4537@handsnet.org National Center for Learning Disabilities (NCLD) 381 Park Avenue South, Suite 1401 New York, NY 10016 (212) 545-7510; 1-888-575-7373 URL: http://www.ncld.org National Down Syndrome Congress 1605 Chantilly Drive, Suite 250 Atlanta, GA 30324 (800) 232-6372; (404) 633-1555 Pamphlet available in Spanish Spanish speaker on staff E-mail: ndsc@charitiesusa.com URL: http://www.carol.net/~ndsc/ National Down Syndrome Society 666 Broadway New York, NY 10012-2317 (800) 221-4602; (212) 460-9330 URL: http://ndss.org National Easter Seal Society, Inc. 230 West Monroe Street, Suite 1800 Chicago, IL 60606 (800) 221-6827; (312) 726-6200 (Voice) (312) 726-4258 (TTY) E-Mail: nessinfo@seals.com URL: http://www.seals.com National Fragile X Foundation 1441 York Street, Suite 303 Denver, CO 80206 (800) 688-8765; (303) 333-6155 E-mail: natlfx@aol.com National Library Services for the Blind & Physically Handicapped The Library of Congress Washington, D.C. 20542 (800) 424-8567; (202) 707-5100 (Voice) (800) 424-9100 (TTY, English) (800) 345-8901 (TTY, Spanish) E-Mail: nls@loc.gov URL: http://www.loc.gov/nls National Mental Health Association 1021 Prince Street Alexandria, VA 22314-2971 (800) 969-6642 (703) 684-7722 E-mail: nmhainfo@aol.com URL: http://www.nmha.org National Neurofibromatosis Foundation 95 Pine Street; 16th Floor New York, NY 10005 (800) 323-7938; (212) 344-NNFF E-Mail: NNFF@aol.com URL: http://www.nf.org National Parent Network on Disabilities 1727 King Street, Suite 305 Alexandria, VA 22031 (703) 684-6763 (Voice/TTY) E-Mail: npnd@cs.com URL: http://www.npnd.org National Parent to Parent Support and Information System, Inc. P.O. Box 907 Blue Ridge, GA 30513 (800) 651-1151; (706) 632-8822 E-mail: Judd103w@wonder.em.cdc.gov URL: http://www.nppsis.org National Patient Air Transport Hotline P.O. Box 1940 Manassas, VA 20108-0804 (800) 296-1217 E-Mail: npathmsg@aol.com URL: http://www.npath.org National Scoliosis Foundation 5 Cabot Place Stoughton, MA 02072 (800) 673-6922; (617) 341-6333 E-mail: scoliosis@aol.com National Sleep Foundation 729 15th Street, NW 4th Floor Washington, DC 20005 (202) 347-3471 E-mail: natsleep@erols.com URL: http://www.sleepfoundation.org National Spinal Cord Injury Association 8300 Colesville Road, Suite 551 Silver Spring, MD 20910 (800) 962-9629; (301) 588-6959 E-mail: nscia2@aol.com URL: http://www.spinalcord.org National Tuberous Sclerosis Association 8181 Professional Place, Suite 110 Landover, MD 20785-2226 (800) 225-6872; (301) 459-9888 E-mail: ntsa@aol.com URL: http://www.ntsa.org/ Neurofibromatosis, Inc. 8855 Annapolis Road, Suite 110 Lanham, MD 20706-2924 (800) 942-6825 E-mail: NFinc@gnn.com Orton Dyslexia Society Chester Building # 382 8600 LaSalle Road Baltimore, MD 21286-2044 (800) 222-3123; (410) 296-0232 E-mail: info@ods.org URL: http://www.ods.org Osteogenesis Imperfecta Foundation 804 Diamond Ave., Suite 210 Gaithersburg, MD 20878 (800) 981-BONE E-mail: bonelink@aol.com URL: http://users.aol.com/bonelink President's Committee's Job Accommodation Network West Virginia University 918 Chestnut Ridge Road, Suite 1 P.O. Box 6080 Morgantown, WV 26506-6080 (800) 526-7234 (Voice/TTY) (800) 232-9675 (Voice/TTY, information on the ADA) E-mail: jan@jan.icdi.wvu.edu URL: http://janweb.icdi.wvu.edu Recording for the Blind and Dyslexic The Anne T. Macdonald Center 20 Roszel Road Princeton, NJ 08540 (800) 221-4792; (609) 452-0606 URL: http://www.rfbd.org Sibling Information Network A.J. Pappanikou Center University of Connecticut 249 Glenbrook Road, U64 Storrs, CT 06269-2064 (860) 486-5035 Spanish speaker on staff Special Olympics International 1325 G Street N.W., Suite 500 Washington, D.C. 20005 (202) 628-3630 Publications available in Spanish and French Spanish - French speaker on staff E-mail: specialolympics@msn.com URL: http://www.specialolympics.org/ Spina Bifida Association of America 4590 MacArthur Boulevard, N.W., Suite 250 Washington, D.C. 20007-4226 (800) 621-3141; (202) 944-3285 E-mail: spinabifda@aol.com URL: http://www.infohiway.com/spinabifida Technical Assistance to Parent Programs (TAPP) Federation for Children with Special Needs 95 Berkeley Street, Suite 104 Boston, MA 02116 (617) 482-2915; (800) 331-0688 (in MA only) Spanish speaker on staff E-Mail: fcsnifo@fcsn.org URL: http://www.fcsn.org/tapp/home.htm Trace Research & Development Center S-151 Waisman Center, 1500 Highland Avenue University of Wisconsin-Madison Madison, WI 53705-2280 (608) 262-6966; (608) 262-5408 (TTY) URL: http://www.trace.wisc.edu/ United Cerebral Palsy Associations, Inc. 1660 L Street, N.W., Suite 700 Washington, DC 20036 (202) 776-0406; (800) 872-5827 E-Mail: ucpnatl@ucpa.org URL: http://www.ucpa.org Back to the Table of Contents CreditsUpdate 6/97 This fact sheet is made possible through Cooperative Agreement #H030A30003 between the Academy for Educational Development and the Office of Special Education Programs. The contents of this publication do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products or organizations imply endorsement by the U.S. Government. The Academy for Educational Development, founded in 1961, is an independent, nonprofit service organization committed to addressing human development needs in the United States and throughout the World. In partnership with its clients, the Academy seeks to meet today's social, economic, and environmental challenges through education and human resource development; to apply state-of-the-art education, training, research, technology, management, behavioral analysis, and social marketing techniques to solve problems; and to improve knowledge and skills throughout the world as the most effective means for stimulating growth, reducing poverty, and promoting democratic and humanitarian ideals. Back to top |
